Hey, there fellow chronic warriors. Who else here finds themselves involuntarily rolling the dice when it comes to showering ? or as I often call it..playing Fibromyalgia shower roulette. I love showers. Long boiling hot ? showers. They are my savior; they are my downfall. It can go either way. From one shower to the next there is no…

Obviously, I cannot answer for all of the people of the countries in the world, however, those people that I interviewed for the most part either never heard of fibromyalgia or had very little knowledge of this condition. In my opinion, the people that I interviewed were well educated. Some had heard the term fibromyalgia but had little knowledge…

Maybe the doctor you followed some patients with the presumptive diagnosis of fibromyalgia. And maybe after years of following them, and checking for objective signs of disease- lab abnormalities, physical changes, etc. your doctor never found anything to document a medical illness. But the patients always had the same complaints, always complained of fatigue, not sleeping, muscle aches and not being able…

Meet Hilary Neumann! She has lived with Fibromyalgia and several other diagnoses for many years. In the video below she tells her story of how she handles living with fibromyalgia. Her strength and determination to live her best life has shown me how to power through when living with a fibromyalgia diagnosis. Listen to her story below: Different Fibromyalgia Treatments Hilary…

“America is one of the few advanced nations that allow direct advertising of prescription drugs, Robert Reich BigPharma makes huge profits from those of us suffering from chronic pain, fatigue, depression, anxiety,  itching, and digestive issues- to name a few of the common symptoms of fibromyalgia. Every day we are inundated with advertisements about prescription drugs that would alleviate these symptoms….

“Everybody gets so much information all day long that they lose their common sense”, Gertrude Stein To write that I am frustrated, angry, and discouraged over the recent hoopla this week in the news from the U.S. Institute of Medicine (IOM) report on Chronic Fatigue Syndrome is to be putting it mildly. As is usual with someone who has CFS and…

Seem like? I hope no one you know ever has this awful syndrome. It affects your muscles, your nerves, and your brain. The pain is intense and fluctuates with the only blessing being there is no visible tissue damage. The brain has much higher cortisone levels with less relief and the signals between neurotransmitters get glitchy increasing difficulties such…

“The amygdala in the emotional center sees and hears everything that occurs to us instantaneously and is the trigger point for the fight or flight response “, Daniel Goleman. Many years ago I had hoped that it wouldn’t take long before most would finally give up searching for viral/bacterial/hormonal or other CAUSES of fibromyalgia and agree with my theory that this demon is…

“He’s (sic) the best physician that knows the worthlessness of most medicines”, Benjamin Franklin This is not a blog about doctor bashing. I have been so fortunate for many decades to have a physician who does not suggest unnecessary tests and is sympathetic, highly intelligent, and comforting. Rather it is about the run around that many people with chronic pain experience…

Last week I traveled to the California Fibromyalgia Research and Treatment Center to visit with Doctor R. Paul St. Amand and his assistant Claudia Marek. During my visit, I found that the research center is getting closer to identifying the genetic component that triggers fibromyalgia and its many symptoms. Since pharmaceutical companies control where and how much of the research…